PCORnet, the National Patient-Centered Clinical Research Network, is an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI). It is designed to make it faster, easier, and less costly to conduct clinical research than is now possible by harnessing the power of large amounts of health data and patient partnerships. In the process, it is transforming the culture of clinical research from one directed by researchers to one driven by the needs of patients and those who care for them.
The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors has agreed to provide up to $25.4 million in additional infrastructure-building funds to support the long-term sustainability of PCORnet through a newly incorporated People-Centered Research Foundation (PCRF), a nonprofit formed this month by PCORnet investigators to advance and support the network’s sustainability. Visit the PCRF Website … Continue reading People-Centered Research Foundation Established
Author: Laura Kolaczkowski, Co-Principal Investigator of iConquer Multiple Sclerosis Patient-Powered Research Network (MS-PPRN). Multiple Sclerosis (MS) Awareness Week (March 5-11th) is a weeklong national effort to increase awareness of MS, and provides an opportunity to examine how asking and listening to communities of patients can improve how we make connections between people living with chronic … Continue reading iConquerMS™ Members Revamp Recruiting Materials to Reflect Community Preferences
Getting to the Heart of Patient Needs: PCORnet’s Health eHeart Alliance PPRN & PaTH CDRN Find New Ways of Managing & Preventing Cardiovascular Disease
The American Heart Association, the Centers for Disease Control (CDC) and the Heart Foundation all mark February as a month to boost awareness and promote research that brings patients and providers practical solutions for the nation’s leading cause of morbidity and mortality: cardiovascular disease. According to the CDC, someone in the U.S. has a heart … Continue reading Getting to the Heart of Patient Needs: PCORnet’s Health eHeart Alliance PPRN & PaTH CDRN Find New Ways of Managing & Preventing Cardiovascular Disease