PCORnet, the National Patient-Centered Clinical Research Network, is an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI). It is designed to make it faster, easier, and less costly to conduct clinical research than is now possible by harnessing the power of large amounts of health data and patient partnerships. In the process, it is transforming the culture of clinical research from one directed by researchers to one driven by the needs of patients and those who care for them.
The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors recently approved more than $20 million for studies that will use PCORnet, the National Patient-Centered Clinical Research Network, to test ways to improve care for people with arthritis, blood pressure, depression and irritable bowel disease. PCORnet is PCORI’s initiative to improve the nation’s capacity to conduct … Continue reading PCORI Board Approves Research to Promote Partnerships Between PCORnet and Other Organizations
The People-Centered Research Foundation (PCRF) announced that Richard Turman, MPP, will be joining the organization as chief operating officer. Mr. Turman currently serves as the deputy director of the U.S. Food and Drug Administration (FDA) Center for Tobacco Products. At the PCRF, he joins a team of national leaders in clinical research who established the nonprofit organization to accelerate people-driven … Continue reading People-Centered Research Foundation Names Richard Turman Chief Operating Officer
Empowering the Digital Patient: How Three PCORnet Partner Networks Answered the Call from Patients and Caregivers Who Want to Share Their Own Health Data
In the past few years, Kiely Law has noticed a common frustration in the autism community. Families and adults with autism want to know why it is so hard to share their medical records with the research registry she co-founded, the Interactive Autism Network. As research director of the Interactive Autism Network, a partner network … Continue reading Empowering the Digital Patient: How Three PCORnet Partner Networks Answered the Call from Patients and Caregivers Who Want to Share Their Own Health Data