PCORnet, the National Patient-Centered Clinical Research Network, is an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI). It is designed to make it faster, easier, and less costly to conduct clinical research than is now possible by harnessing the power of large amounts of health data and patient partnerships. In the process, it is transforming the culture of clinical research from one directed by researchers to one driven by the needs of patients and those who care for them.
Author: Carol Brotherton, PhD, MSN, BSN, the Co-Principal Investigator and Patient Representative for the DINE-CD, a PCORnet Patient Powered Research Network (PPRN) study funded by PCORI. Carol earned her nursing degree from the University of Delaware. She earned Masters and Doctoral degrees in Nursing from the University of Virginia. She discovered during 15 years of … Continue reading What Should I Eat? (The Burning Question in Crohn’s Disease)
What if the National Patient-Centered Clinical Research Network (PCORnet) teamed up with another robust distributed research network to combine powers in the pursuit of clinical research? Could researchers use the linkage to enhance complete data for surveillance and glean insights that allow people to make better informed, evidence-based decisions on important health-related matters? A new … Continue reading PCORnet Joins Forces with Sentinel to Link Data for More Robust Public Health Research
May is National Arthritis Awareness Month, a time to raise awareness about the number one cause of disability in the country: arthritis. According to the Arthritis Foundation, more than 50 million adults have doctor-diagnosed arthritis, and by the year 2040, that number is expected to grow to more than 78 million. A Patient-Powered Research Network … Continue reading Creaky and Creative: AR-PoWER Captivates Audiences with Fun and Interactive Engagement Approaches