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PCORnet Best Practice Sharing Session: Leveraging the PCORnet Commons to Engage, Disseminate, and (Hopefully) Transfer Research Innovations
September 22, 2017 @ 11:00 am EST - 12:00 pm EST
- « PCORnet Best Practice Sharing Session: Stakeholder Contributions to Scientific Manuscripts and A Web-Based Platform for Engaging and Connecting Patients & Caregivers
- PCORnet Best Practice Sharing Session – PCORnet Commons Tools for Electronic Consent Workgroup Webinar Series: Part 1. PCORnet Case Studies »
The PCORnet Commons is designed to extend the reach of PCORnet and has the potential to be a conduit for collaboration and innovation in PCORnet and beyond. The publically accessible online community is intended to facilitate communication and collaboration, help users build meaningful relationships, and reinforce a culture of sharing. By providing opportunities for interaction within and outside of PCORnet, the speakers are hoping to show how users can leverage the PCORnet Commons to turn their innovative ideas into tangible solutions. The presentation will discuss the potential for using the Commons to further facilitate collaborations between PCORnet and NCATS (and beyond), review core features of the site, and share information about how people can engage with the tool. With the Commons the medium for collaboration, the speakers will discuss research innovations as a use case for dissemination and collaboration. They will outline the goals, actions, output, and potential next steps of the PCORnet Research Innovations Workgroup as it continues to promote resource sharing and transfer around engaging clinicians, identifying and approaching study participants, leveraging EHRs and e-consent for pragmatic trials, and disseminating study results to participants. Ideas for cross-PCORnet innovation transfer will be presented and explored.
Thomas Carton is the Chief Development Officer for the Louisiana Public Health Institute and Principal Investigator of REACHnet, a PCORI-funded Clinical Data Research Network. He leads a multi-institutional and multi-disciplinary team that is creating a regional informatics, patient engagement, and research infrastructure to efficiently conduct pragmatic clinical trials nested within the healthcare delivery system. He serves on the PCORnet Research Committee, where he leads a research innovations workgroup that explores and disseminates advances in research efficiency, co-coordinates research efforts across 11 Collaborative Research Groups, and co-leads the Public Health Research Interest Group. He is a member of an Agency for Healthcare Research and Quality (AHRQ) Technical Expert Panel outlining competencies for the next generation of Learning Health System (LHS) researchers. Additionally, he is an Adjunct Professor in the Department of Global Health Management and Policy at the Tulane University School of Public Health and Tropical Medicine, where he teaches doctoral-level courses in introductory and intermediate econometrics and advises doctoral students.
Joanna Ball is the Digital Community Manager for PCORnet Commons at Genetic Alliance, Joanna is responsible for managing, evolving, and sustaining the PCORnet Commons platform and online community, as well as curating resources and tools to be shared on this digital space. Joanna has expertise in strategic communication, community outreach, and project coordination to improve quality of life for individuals and communities. She is passionate about creating connections between industry, communities, and individuals to help people find – and successfully use the resources necessary to improve health and well-being. Prior to joining Genetic Alliance, Joanna was a Health Communications Fellow at the National Cancer Institute, Center for Biomedical Informatics and Information, which leads the coordination, development, and deployment of enterprise-wide digital capabilities (including biomedical informatics, scientific-management information systems, and computing resources) in support of the Institute’s initiatives.
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