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The Unsung Role Caregivers Play in People-Driven Research

Valentine’s Day is upon us, but when you are a caregiver for someone, there’s no need for a special day to show your love. For the 43.5 million unpaid caregivers in the United States, unconditional care that goes above and beyond is a constant daily practice. It’s not a stretch to say that these caregivers … Continue reading The Unsung Role Caregivers Play in People-Driven Research

PCORnet Leaders Accept New Roles with Research and Data Committees

The new year brought additional opportunities for network members to participate in PCORnet’s governing committees. The PCORnet Council is pleased to welcome several colleagues to new roles within the Research and Data Committees. Keith Marsolo will now serve as chair of PCORnet’s Data Committee. Marsolo is an associate professor in the division of Biomedical Informatics … Continue reading PCORnet Leaders Accept New Roles with Research and Data Committees

Promises Kept and New Resolutions: PCORnet’s Year in Review

As we close the door on 2017 and begin a new year, it’s a good time to ask: has PCORnet, the National Patient-Centered Clinical Research Network, a PCORI initiative, remained steadfast in its mission? We pledged to enable people to make informed healthcare decisions by conducting clinical research that is better, faster, less expensive, and … Continue reading Promises Kept and New Resolutions: PCORnet’s Year in Review

Call for Abstracts: 2018 AcademyHealth Annual Research Meeting

The 2018 AcademyHealth Annual Research Meeting (ARM) is a great opportunity to showcase PCORnet research. ARM, which will take place Jun. 24-26 in Seattle, Washington, is now accepting abstracts for panels on critical and emerging issues in health services research, policy roundtables, research panels, student posters, and abstract sessions. The abstract submission deadline is January … Continue reading Call for Abstracts: 2018 AcademyHealth Annual Research Meeting

Invisible No More: COPD PPRN Moves Research Forward to See the Full Picture

Authors: Elisha Malanga is the Chief Research Officer of the COPD Foundation, a patient-led advocacy organization dedicated to improving the lives of those affected by COPD and the prime organization for the COPD Patient-Powered Research Network (COPD PPRN). She has worked with the COPD Foundation since 2008 and has led numerous efforts including the creation of … Continue reading Invisible No More: COPD PPRN Moves Research Forward to See the Full Picture

Unlocking Patient and Caregiver Partnerships in Obesity Research: ObesityWeek 2017

As researchers dive into the details of obesity science, they are learning that, like most mechanisms of the human body, obesity is a result of myriad factors at play. In simpler terms, if the relationship between excess weight and the human body were to have a Facebook status, it would almost certainly be: “it’s complicated.” … Continue reading Unlocking Patient and Caregiver Partnerships in Obesity Research: ObesityWeek 2017

2017 PCORI Annual Meeting Features PCORnet Research and Opportunities

“Delivering Results, Informing Choices.” That was the theme of the 2017 Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting, and PCORI naturally wanted to showcase how its most ambitious effort to date is bringing that theme to life. That’s why it’s no surprise that PCORnet, the National Patient-Centered Clinical Research Network, was front and center at … Continue reading 2017 PCORI Annual Meeting Features PCORnet Research and Opportunities

Academic Medicine Features PCORnet Partner Network OneFlorida

Florida is an ideal place to conduct clinical research in real-world settings where people receive healthcare. As the state with the third highest population in the country, Florida is known for its racial, ethnic, and geographic diversity. This makes it well suited to test how healthcare practices impact a broad range of people. However, to … Continue reading Academic Medicine Features PCORnet Partner Network OneFlorida

When Opportunity Knocks: PCORnet’s ‘Front Door’ Offers Researchers Fast, Easy Access to Rich Data

PCORnet, the National Patient-Centered Clinical Research Network, a PCORI initiative, is increasingly generating buzz as a game changer in clinical research. The Network has been described in many ways: a bridge that unites patients, families, providers, and researchers; a learning health system with the power to drive more meaningful, faster, and less costly patient-centered insights; … Continue reading When Opportunity Knocks: PCORnet’s ‘Front Door’ Offers Researchers Fast, Easy Access to Rich Data

Attending AMIA 2017? Here’s What You Need to Know

The American Medical Informatics Association (AMIA) is set to hold its biggest conference to date on November 4-8, 2017, in Washington, DC. Numerous PCORI and PCORnet colleagues will be there sharing leading-edge scientific research. AMIA’s 2017 Annual Symposium will host over 100 scientific sessions, presenting work spanning translational bioinformatics, clinical research informatics, public health informatics, … Continue reading Attending AMIA 2017? Here’s What You Need to Know