PCORnet is a national resource, funded by PCORI®, that enables insights from high-quality health data, patient partnership, and research expertise to deliver fast, trustworthy answers that advance health outcomes.
PCORnet® Resources Are Advancing Rare Disease Research
By leveraging the real-world data resources, patient-informed insights, and the national-scale infrastructure of PCORnet®, investigators are overcoming longstanding challenges in rare disease research. Historically, research in rare health conditions has been limited by small, geographically dispersed patient populations and gaps in natural history data.
PCORnet® Playbook
Researchers who partner with PCORnet® have access to unique representative health data, research expertise, and patient insights. Whether you are a new or an experienced researcher, the PCORnet® Playbook is your go-to guide for navigating the PCORnet infrastructure, tapping into expert support, and integrating patient perspectives into your research from the start.
Research Highlights Illustrate Power of PCORnet®
Learn how researchers are using PCORnet to improve patient outcomes by fueling the kind of large-scale research needed to:
- Understand how different metabolic pathways interact
- Answer key questions in cardiovascular research
- Solve challenges in nephrology research
- Explore approaches to pediatric research
- Surface answers with rare disease research
REACHnet
REACHnet, a PCORnet® Clinical Research Network, includes electronic health record data for nearly 5 million patients (2023 data) from partner health systems in Louisiana, Texas and California. Its mission is to enable the conduct of multi-site research with enhanced efficiency in real-world healthcare delivery systems. REACHnet offers linkage with claims data through partnerships with Blue Cross Blue Shield of Louisiana, Humana, and Louisiana Medicaid.
Check out REACHnet's Patient Partner Recruitment & Selection Toolkit
Special Journal Supplement
A PCORI-sponsored supplement of the journal Medical Care looks at the scope and scale of PCORnet. The 19 peer-reviewed open-access articles demonstrate the robust scientific value of PCORnet in accelerating patient-centered comparative clinical effectiveness research.
Tools to Speed Study Start-up
Conduct patient-centered comparative clinical effectiveness research more efficiently by addressing some of the most time-consuming, costly, and difficult aspects of study start-up.